People experiencing homelessness frequently face advanced ill health and death at a young age. Despite the high level of need for palliative care within this vulnerable group, access to services is often limited, meaning that their deaths are often unplanned and unsupported.
To ensure that services are designed to provide effective support for everyone’s needs, researchers need to work alongside people with different lived experiences of palliative and end of life care.
Produced by Marie Curie in partnership with Pathway, Groundswell, UCL, the University of York, and the National Institute for Health and Care Research, the TIFFIN report makes seven recommendations for involving people with lived experience of homelessness in pallaitive and end of life care research. Key recommendations include working transparently and considering how to navigate institutional resistance.